Improving Quality Of Life

The life of a boy with Duchenne can be qualitatively improved by making use of the following guidelines:Just like anyone else, boys with Duchenne have a whole life with possibilities ahead of them. Quality of life is more important than quantity. So when a boy with Duchenne, his family and the people around him make every effort to give him a good life and try to get everything out of it, this boy may have a better life than many other (physically) healthy people.

Try not to look into the future; instead, try to enjoy every day and the little things that make a day good.
Treat him the same way you treat other (physically healthy) children. Boys with Duchenne mention this as one of their biggest wishes.
Try to let him do the same as other children as much as possible. Let him play outside, just like other children. To avoid muscle damage it is important to use lighter materials and tools.
Stimulate him to undertake and keep up relationships with friends. This is vital for his well-being.
Spread awareness of educating the child and using a wheelchair, which would benefit their child for socializing.
For as long as possible, let him do as much as he can by himself. It will give him a feeling of independence and self-esteem.
Look for a nice hobby together.
Do enjoyable activities such as day trips. Do not stop doing activities because of Duchenne. If a certain activity doesn’t work any more, try to find creative solutions.