What Is DMD ?

The most common muscular dystrophy in children is Duchenne muscular dystrophy. It's an illness that causes muscles to weaken over time, eventually affecting the entire body. It is not contagious to have Duchenne muscular dystrophy. Duchenne affects around one out of every 3,500 boys, and 20,000 kids are born with it each year throughout the world. Duchenne affects predominantly boys and affects people of all colours and cultures. Even brothers with the same mutation may experience symptoms in quite different ways. The symptoms of Duchenne are progressive, ranging from mild to severe.

About Us

We think from the perspective of a mother of specially-abled. We should come together and help each other to bring up a child. There are many questions and confusions in the mother's mind while bringing up a specially-abled child. We took the initiative to form this group for mothers of DMD. We are here to help you and guide you through. Duchenne Muscular Dystrophy (DMD) is the most common form of muscular dystrophy. It is a rare genetic condition that weakens a child's muscle and spreads loss of muscle mass throughout the body.

Our Objectives

We all DMD moms are sailing in the same boat and have to face a lot of challenges while taking care of our children. Being a DMD mom I often hold my son's hands at least for 10 to 15 minutes daily sitting in front of him smiling, talking and sharing my feelings. Slowly it became a habit and he started feeling cared, connected and relaxed. He shares almost everything with me and his elder brother. Normally these children as they grow up start keeping their pains to themselves but holding hands with a smile can do wonders. This effects their mental health of children as well.

• To maintain a child's mental and physical health and lessen the side effects of DMD to provide a better quality of life.
• Have online monthly meetings with mothers. These meetings provide a platform for mothers to share their experiences, clarify doubts and learn from each other.
• Share about availability and usage of durable medical equipment.
• To explore, encourage and appreciate talent in the children.

Care

Physiotherapy

Physiotherapy is an important part of life for DMD patient it help patient to maintain mobility.

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Hydrotherapy

Hydrotherapy can be a highly effective form of therapeutic exercise for people with muscle-wasting conditions.

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Diet

food and drink regularly provided or consumed. 2 : habitual nourishment. 3 : the kind and amount of food prescribed.

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Counselling

Counseling is a collaborative effort between the counselor and client. Professional counselors help clients identify goals.

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